So yesterday was very interesting. Because Ronnie is having more seizures, neurogoly wants us to increase one of her meds (topomax) which of course, is the most expensive one. We are going to give her a couple of extra days just to see if maybe she was overly tired from lack of sleep, insomnia being a side effect of Angelman syndrome. Thankfully she usually stays fairly quiet, a situation that from my understanding is not all that common among AS kids.
Anyway we are going to give her a couple of extra days and maybe by the weekend we'll increase the dosage.
As for Emma, she's just weird. I love the kid to death but when she is upset, she is Goth to the end but when she is happy she is so ebullient its almost weird; funny but weird. We've started using Evening Primrose Oil to treat PMS symptoms so maybe that is having an effect? I'll keep you posted. What I do know for sure is that right now all seems to be right with her world which reduces the stress on us. I think (I hope) we (meaning Brian) are taking on less of her stress which in turn is reducing the swirling vortex of misery effect.
Let's hope it lasts.
'til next time
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